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Dermatitis herpetiformis

Essential points for quick revision.

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Dapsone blood or oxygen toxicity

New breathlessness, cyanosis with a misleadingly adequate arterial oxygen tension, fatigue, jaundice, dark urine, fever, mouth ulcers, bruising or severe rash may indicate methaemoglobinaemia, haemolysis, agranulocytosis or hypersensitivity.

Action: Stop dapsone and obtain urgent observations, co-oximetry, full blood count, reticulocytes, haemolysis, liver and renal assessment; admit and treat through toxicology or haematology when symptomatic or physiologically abnormal.

Synopsis

Recognise intensely itchy excoriated extensor disease as a cutaneous expression of gluten-sensitive enteropathy, confirm granular IgA correctly, and combine a strict gluten-free diet with safe dapsone treatment.

  • Dermatitis herpetiformis is a very itchy symmetrical eruption of grouped papules and small vesicles on elbows, knees, buttocks, shoulders and scalp; scratching often removes intact blisters before examination.
  • The name describes a herpes-like grouping, not herpes infection. It is the skin manifestation of gluten-sensitive coeliac disease and can occur without gastrointestinal symptoms.
  • Take direct-immunofluorescence tissue from normal-appearing perilesional skin, not an excoriated lesion; granular IgA at dermal papillary tips is the diagnostic pattern.

Key red flags

Rapidly blistering or painful skin, extensive mucosal disease, fever, weight loss, persistent diarrhoea, severe anaemia, neurological symptoms or dapsone toxicity is not routine dermatitis herpetiformis follow-up and needs urgent assessment.

Dapsone toxicity

Cyanosis, dyspnoea, jaundice, dark urine, fever, mouth ulcers, bruising or widespread rash while taking dapsone requires urgent cessation and investigation.

Investigation priorities

01
Direct immunofluorescence of normal perilesional skinFirst step

Detect the characteristic IgA deposits while avoiding excoriated, inflamed tissue that has lost them.

Management branches

First diagnostic sequenceKeep gluten in place until evidence is secured

A symmetrical excoriated extensor eruption raises dermatitis herpetiformis.

  1. Document distribution, intact vesicles, treatment, diet, bowel and deficiency symptoms and photograph a fresh representative area with consent.
  2. While gluten is still being eaten, take normal perilesional skin for direct immunofluorescence and a separate lesion for routine histology when useful, then request total IgA and IgA tTG.

Key medicines

DapsoneStart 50 mg by mouth once daily and increase gradually only if required, up to the specialist maximum; once lesions subside reduce promptly to the minimum, usually 25–50 mg daily.
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Sources and review status4 sources · checked 27 Aug 2026 · clinical review pending
Sources

Sources and review status

National guidance is shown before implementation-dependent detail. Typical adult dose examples remain subject to patient factors, contraindications and the live BNF or specialist protocol. Source check completed 27 Aug 2026; clinical approval remains outstanding.

Authoring stateRapid draftClinical stateAwaiting reviewJurisdictionUnited Kingdom